Eden my sweet 6 month old girl (EB) has....pulmonic stenosis ...

[Tanya Allen]

Hi Everyone...
So glad I found this forum...I'm looking for all the advice I can get...
My baby has pulmonic stenosis ... doc says they may can do surgery...her heart murmur is 3/4
Just looking to talk to others going through this with their baby.... She is on Beta blockers right now
moving her up slowly on the dose...She eats Royal Canin food...light excersize...has anyone had their baby spayed with this condition??...
Thanks for any help!...

 

[2BullyMama]

@Kim Sebastian n Oliver @desertskybulldogs

I've tagged a few that have knowledge of heart murmurs. Best of luck - keep us posted and we'll be praying for all to go well.

 

[JAKEISGREAT]

Ohhh..I just saw this..hopefully others with experience will chime in. We do have a couple here with heart murmurs. Hang tight..they will find you!


Ohhhh I just realized this is YOU Tanya..I have had Kim on the lookout for you! I'll go see if I can get her here pronto!!

 

[MissPennyLue]

I don't have any knowledge to be able to share, but there will be some who do. I just wanted to say welcome to the board & glad you found us. This is a WONDERFUL resource and support system.

 

[webster03]

Hope you find the info you are looking for


Kelly aka Macy's Momma

 

[agingermom]

I am sorry you found us under these circumstances!! Welcome!!

 

[ChanelnBrutus]

You def found the right place! I will keep you and your little girl in our prayers! Sorry I don't know much about this but there will be others who can give you some advice. We are here if you need us!

Rosemarie,Brutus, and Chanel


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I am here: http://maps.google.com/maps?ll=40.658939,-74.233514

 

[LariP]

I'm sure Kim and Lisa will be along soon to help with your questions.

 

[bullmama]

Welcome to EBN! Sorry you found us under such sad circumstances. I imagine if they have you on Beta blockers then they have done an Eco-cardiagram? If not, that would be your next step to see if your baby is a candidate for surgery, medications, ect. I know that many times there is possibilities of repair and a nice long life, so don't worry yourself just yet too much until you have all of your answers.

 

[kim n the guys]

Hi again Tanya. I'm so sorry that Eden's echo showed pulmonic stenosis. Did they classify it anyway? My Sebastian has pulmonic stenosis also, but his was classified as severe & I'm taking my new baby Remy in tomorrow for his echo as my regular vet has also diagnosed him with a grade 3 murmur & possible PS. It's good that they have her on beta blockers & as far as the spaying, my vet is still planning on neutering Sebastian after he gets his yearly checkup & echo done in March, so I would think that she would be fine. Please don't hesitate to get in touch if you have any more questions.

 

[BruceP]

SOrry I can't advise you on this but I wanted to you to the forums. Thanx for joining and I hope you find what you need here. Pix of your baby bully would be wonderful.

 

[JeannieCO]

to EBN and I'm so sorry to hear that your baby Eden has PS. You have great advice and Kim's (up above) Remy has just been diagnosed with PS too. You'll have wonderful support here. to you and Eden.

 

[Tanya Allen]

Thank You all so much for your kind words... Edens doing good right now...We go back to heart doc in July and see what they say then...but they are saying she might be a candidate for surgery....Thanks for all the prayers... If I can figure out how to post a pic I will soon!...Thanks!

 

[kim n the guys]

So besides the Beta Blockers, they haven't done any further testing on her, am I right? Remy goes in next Tuesday for the first part of his procedure, the angiocardiography on Wednesday which will then show whether they can proceed with the balloon plasty or not. He was not put on any medication when I took him in for his first echo back in February and he's grown so much that no one even knows there is anything wrong with him. He's different from Sebastian, my other EB with PS. Sebastian is smaller in size and I think Remy is going to be a big boy like Oliver. When I compare weights between them at the same age, Remy is right up there with Oliver and Oliver is a big stocky boy at 62# at 16 months.