@Cat01, WELCOME, and I am glad you are loving it, you are only going to love it more, we are all fanatics about our babies. Maddie is so beautiful I love the picture and the tongue!! I do not have any personal experience with spinal defects but I already know a few that do and can give you much information and experiences. Ask any questions you want, someone on here will know or been there done that. Again Welcome and please share your story about the spinal defect, I am interested.